Challenges for palliative care day services: a focus group study

F. Hasson, Joanne Elizabeth Jordan, Laurie Mc Kibben, Lisa Graham-Wisner, Anne Finucane, Kathy Armour, Shazia Zafar, Alistair Hewison, Kevin University, W.George Kernohan

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Abstract

Background: Palliative care day services provide a safe environment for people with palliative care needs, enabling them to access a range of services while acting as a respite services for family caregivers. Viewed as marginal services, they are often under resourced and under researched. The aim of this study was to understand how palliative day care services contribute to client care from the perspective of management and hospice multidisciplinary teams.

Methods: A descriptive qualitative study, using six focus groups conducted with staff at three United Kingdom hospices in England, Scotland and Northern Ireland. Thirty-five participants were recruited, including management and staff. Discussions were transcribed and analysed thematically.

Results: Four key themes emerged: (1) variations of care, beyond heterogeneity of patients; (2) unclear referrals and inconsistent patient population; (3) recognising strengths and challenges and (4) an uncertain future. A major focus of group discussions was the model of care and the benefits of the service, however the importance of demonstrating services’ effectiveness and value for money was highlighted.

Conclusions : Management and hospice staff believed day-services to be a helpful introduction to palliative care, providing both social and medical support. Economic pressures and patient demand were influencing them to move from a social model to a hybrid model. Further research is needed to understand the effectiveness of the service.
Original languageEnglish
Article number11
Pages (from-to)11
JournalBMC Palliative Care
Volume20
Issue number1
DOIs
Publication statusPublished - 12 Jan 2021

Bibliographical note

Funding Information:
We wish to acknowledge all day care staff who took part in this research. In particular, we had support with setting up focus groups at three Marie Curie Hospices: from Rachel Perry, Research Nurse, West Midlands, England; from Marie Morrissey, Day Hospice Manager and Gail Watson, both at Belfast, Northern Ireland and from Libby Milton, Lead Nurse at Edinburgh, Scotland.

Funding Information:
This study was sponsored by Ulster University and approved by the Health Research Authority (Ref Number: 15/NW/0944) in April 2016. Although the work was supported by Marie Curie a registered charity, funding was independent of service provision. Written informed consent was obtained from all study participants.

Funding Information:
This study was supported by Marie Curie UK research grant (C38861/A17114). The funding body had no role in the design of the study and collection, analysis, and interpretation of data and in writing the manuscript.

Publisher Copyright:
© 2021, The Author(s).

Copyright:
Copyright 2021 Elsevier B.V., All rights reserved.

Keywords

  • Day care
  • Hospice program
  • Palliative care
  • Qualitative research

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