EUROCAT: an update on its functions and activities

David Tucker, Joan Morris, Amanda Neville, Ester Garne, Kinsner-Ovaskainen Agnieszka, Lanzoni Monica, Maria Loane, Simona Martin, Ciaran Nicholl, Judith Rankin, Anke Rissmann

Research output: Contribution to journalArticlepeer-review

11 Citations (Scopus)

Abstract

This paper provides an outline of the development and growth of EUROCAT, the European network of congenital anomaly registers. In recent years the network has been through a period of transition and change. The Central Register of data has transferred from the Ulster University to the EU Joint-Research-Centre, Ispra, Italy.The benefits of combining data from across Europe, from different populations and countries are described by the uses to which these data can be put. These uses include:. surveillance of anomalies at a local, regional or pan-European level. pharmacovigilance. registration of rare diseasesNew studies and projects are underway, including EUROlinkCAT (a Horizon 2020 funded data-linkage project), promising a fruitful future in further research of congenital anomalies.
Original languageEnglish
Pages (from-to)1-4
Number of pages4
Journal Journal of Community Genetics
Early online date7 May 2018
DOIs
Publication statusE-pub ahead of print - 7 May 2018

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