EUROCAT: an update on its functions and activities

David Tucker, Joan Morris, Amanda Neville, Ester Garne, Kinsner-Ovaskainen Agnieszka, Lanzoni Monica, Maria Loane, Simona Martin, Ciaran Nicholl, Judith Rankin, Anke Rissmann

Research output: Contribution to journalArticlepeer-review

7 Citations (Scopus)

Abstract

This paper provides an outline of the development and growth of EUROCAT, the European network of congenital anomaly registers. In recent years the network has been through a period of transition and change. The Central Register of data has transferred from the Ulster University to the EU Joint-Research-Centre, Ispra, Italy.The benefits of combining data from across Europe, from different populations and countries are described by the uses to which these data can be put. These uses include:. surveillance of anomalies at a local, regional or pan-European level. pharmacovigilance. registration of rare diseasesNew studies and projects are underway, including EUROlinkCAT (a Horizon 2020 funded data-linkage project), promising a fruitful future in further research of congenital anomalies.
Original languageEnglish
Pages (from-to)1-4
Number of pages4
Journal Journal of Community Genetics
Early online date7 May 2018
DOIs
Publication statusE-pub ahead of print - 7 May 2018

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